Friday, September 11, 2009

30 Things About My Invisible Illness You May Not Know

Figured I'd do this, to give a little more info about myself.

1. The illness I live with is: Ehlers-Danlos Syndrome, Hypermobility Type
2. I was diagnosed with it in the year: 2005
3. But I had symptoms since: I can remember.
4. The biggest adjustment I’ve had to make is: Accepting the fact that there isn't a real treatment for this.
5. Most people assume: Nothing is wrong with me, and I complain too much.
6. The hardest part about mornings are: Just getting out of bed.
7. My favorite medical TV show is: House M.D.
8. A gadget I couldn’t live without is: My iPod. Nothing makes me happier than music.
9. The hardest part about nights are: Trying to fall asleep when I'm in so much pain.
10. Each day I take 7-11 pills & vitamins.
11. Regarding alternative treatments I:
Will try anything to ease the pain.
12. If I had to choose between an invisible illness or visible I would choose: Invisible.
13. Regarding working and career: College is very difficult, what with getting up early and all the walking/stairs.
14. People would be surprised to know: I was told I would never succeed in college, but so far I'm doing great.
15. The hardest thing to accept about my new reality has been: There are things I love that I can no longer do.
16. Something I never thought I could do with my illness that I did was: Ski.
17. The commercials about my illness: Don't exist.
18. Something I really miss doing since I was diagnosed is: Being able to run.
19. It was really hard to have to give up: My dreams of being a chef.
20. A new hobby I have taken up since my diagnosis is: Horseback riding.
21. If I could have one day of feeling normal again I would: Run around, go downhill skiing, spend all day enjoying life.
22. My illness has taught me: Not to judge people so quickly.
23. Want to know a secret? One thing people say that gets under my skin is: "Did you know you parked in a handicapped space?"
24. But I love it when people: Know what my illness is, and understand.
25. My favorite motto, scripture, quote that gets me through tough times is: I am not afraid to keep on living.
26. When someone is diagnosed I’d like to tell them: Keep your head up, don't let this stop you from taking on the world.
27. Something that has surprised me about living with an illness is: How ignorant people are.
28. The nicest thing someone did for me when I wasn’t feeling well was: Let me sleep in.
29. I’m involved with Invisible Illness Week because: I'm sick of hearing, "You don't look sick!"
30. The fact that you read this list makes me feel: Grateful.


  1. Hi I found your blog through the EDS alert newsletter and thought I would say hello' My children have EDS. So I understand totally where you are coming from.. cheers Kim